The participatory patient

Abstract

This paper introduces the concept of the "participatory patient" as a vehicle to promote attention to patients' dual enactment of participation on participatory design (PD) projects in healthcare. By an empirical case-story from an ongoing PD project in healthcare, I illustrate the relationship between a patient's work on the project as a co-designer and his work of being a patient using a prototype. I conclude by arguing for the importance of being aware of the ways in which patients inscribe patient work and non-work and thinking of what kind of working or non-working patients it implies.

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